ICP Community


Support Group

Support Groups for Intrahepatic Cholestasis of Pregnancy (ICP)

If you are diagnosed with Intrahepatic Cholestasis of Pregnancy, it can feel overwhelming, scary and isolating. We are committed to providing those affected by ICP with a supportive online community. Our “itchy moms” Facebook Group is a constant source of inspiration and information. It’s open to anyone who wishes to join.

Please read the Guidelines and Member rules below before joining. Although we may not always agree with one another, we must all be respectful and treat other group members with compassion and support.

All of our social media channels are monitored by ICP Care moderators. We do our best to keep information current and to ensure all facts are medically correct.

Our goal is to give every woman with ICP the support and resources she needs to deliver a healthy baby.

“Itchy Moms” ICP Care Facebook Group

The main ICP Care Facebook Group is an “open group” which means anyone on Facebook can see the group and join. This also means the group will appear in search results and all content that members post is visible to anyone viewing the group. Since the group is an “open group” your posts can be seen by any of your Facebook friends which is a great way to raise awareness of the condition.

“Private” ICP Care Facebook Group

We do offer an ICP Care Facebook Private Group for anyone with concerns about maintaining their privacy and anonymity. The posts from this group can only be seen by members of the private group. Please send an email to info@icpcare.org to join this closed group along with your reason for needing privacy.

In Memory” ICP Care Facebook Group

The In Memory ICP Care Facebook group is for Moms and family of the precious babies lost to Intrahepatic Cholestasis of Pregnancy. You are not alone and we understand and can give you support having lived through loss due to ICP. Please send an email to info@icpcare.org to join this secret group along with your full name and Facebook link.

ICP Care Facebook Groups by Country

Español (Spanish) Support

Canada Support group

Australia Support group

Local Action Facebook Groups by State

ICP Care Facebook groups by state are local action groups to connect locally for organized fundraisers, events and meet ups. Please send an email to info@icpcare.org with questions. To join your state chapter click on your state below.

Alabama
Alaska
Arizona
Arkansas
California: Northern California and Southern California
Colorado
Connecticut
Delaware (With Maryland for now)
Florida
Georgia
Idaho
Illinois
Indiana
Iowa
Kansas
Kentucky
Louisiana
Maine
Maryland
Massachusetts
Michigan
Minnesota
Mississippi
Missouri
Montana
Nebraska
Nevada
New Hampshire
New Jersey
New Mexico
New York
North Carolina
North Dakota
Ohio
Oklahoma
Oregon
Pennsylvania
Rhode Island
South Carolina
South Dakota
Tennessee
Texas: Dallas, Houston, San Antonio
Utah
Vermont (With New Hampshire for now)
Virginia
Washington
Washington D.C.
West Virginia
Wisconsin
Wyoming

Guidelines and Member Rules for the “Itchy Moms” Facebook group

1. Get to know the ICP Care Itchy Moms Group. Stay on topic, be yourself, ask questions, participate and contribute once you feel comfortable.

2. Be kind, factual, and appropriate. Moderators may delete posts and/or remove members at any time if deemed necessary.

3. Listen carefully. When posting a reply to someone, keep in mind there is another person taking your response to heart. How would you speak to your best friend or family? Please be courteous, do not jump to conclusions, and give others the benefit of the doubt.

4. Refrain from the use of foul language. Any messages containing foul language will be immediately deleted.

5. Do not make suggestions that go against protocol for treating ICP. If you do not prefer to take Ursodeoxycholic Acid (the medication prescribed to treat ICP) do not try to persuade others in the group to refrain from taking their medication. In addition, recommended early induction weeks are dependent on each individual ICP case. Please do not try to convince others that early induction is not necessary or suggest that a home birth is safe. These posts will be removed immediately due to the serious nature of the condition.

6. Do not advertise your own personal business or website. If you are interested in donating a portion of your business’s proceeds to icpcare.org, please visit our volunteer page for information as to how you can get involved.

7. If you are concerned about something email us.